Living with MS presents a unique set of challenges, but one of the most frustrating is MS heat sensitivity. Many people with multiple sclerosis (MS) find that even a slight increase in body temperature can make their MS symptoms worse.
I still remember attempting to do some gardening work which proved quite challenging because as soon as I warmed up, my vision deteriorated quickly. I had to stop and rest for 15 minutes to allow my vision to return. I could then resume my gardening tasks for a few minutes before my failing vision forced another rest break.
This phenomenon, sometimes referred to as heat sensitivity in MS, occurs because nerve fibres in the central nervous system already affected by demyelination struggle to conduct signals efficiently when exposed to heat. Even a minor temperature rise of 0.5°C can significantly impact neurological function.
Many people ask, why heat worsens MS symptoms? The answer lies in how heat impacts the nervous system. When body temperature rises, damaged nerves become even less efficient, leading to an increase in symptoms such as MS muscle spasms and stiffness, MS numbness and tingling, and MS vision problems.
Heat can come from various sources, including:
- Hot weather
- Exercise
- Fever
- Hot baths or showers
- Overheated indoor spaces
As a result, everyday activities that wouldn’t affect someone without MS can quickly become exhausting or even impossible.
Managing Heat Sensitivity in MS: Practical Tips
Cooling Tips for MS Patients
If you struggle with MS and heat intolerance, you’re not alone. Fortunately, there are effective strategies to help you stay cool and minimise flare-ups. Here are 10 cooling tips for MS patients:
- Use cooling vests and wraps – Specialised cooling garments can help regulate body temperature and provide instant relief.
- Stay hydrated – Drinking plenty of cold fluids helps keep your core temperature down.
- Take cool showers – A quick, lukewarm shower can refresh you and prevent overheating.
- Avoid direct sunlight – Seek shade or stay indoors during the hottest part of the day.
- Wear lightweight, breathable clothing – Opt for moisture-wicking fabrics that allow air circulation.
- Use fans and air conditioning – Keeping your living space cool can make a huge difference.
- Try cooling pillows and bedding – These can help maintain a comfortable temperature while you sleep.
- Exercise in a cool environment – Opt for swimming or indoor workouts with air conditioning.
- Plan activities for cooler times of the day – Early mornings and evenings tend to be the best times for outdoor activities.
- Keep a cooling towel handy – A damp towel placed on your neck or wrists can offer immediate relief.
Living with MS: Overcoming Heat Challenges
Costochondritis vs MS Hug
One of the lesser-known yet distressing symptoms of MS is the so-called “MS Hug,” which can feel like a tight band around the chest. This sensation is sometimes confused with costochondritis vs MS Hug. While costochondritis is caused by inflammation of the cartilage in the ribcage, the MS Hug is due to nerve misfiring, often triggered by heat exposure. If you notice worsening symptoms, cooling down may provide relief.
Hot and Bothered: Coping with Heat Sensitivity Multiple Sclerosis
For those of us with heat sensitivity multiple sclerosis, even a minor heatwave can be daunting. The key to managing these challenges lies in preparation and self-awareness. If you notice a rise in symptoms like fatigue, dizziness, or MS vision problems, take a break, cool down, and rehydrate.
Frequently Asked Questions
The first MS flare can vary from person to person, but common early symptoms include MS numbness and tingling, vision problems, dizziness, and fatigue. These symptoms may last for days or weeks and then subside, but they can be distressing. If you suspect an MS flare, it’s essential to consult a neurologist.
People with MS heat sensitivity often describe it as a sudden worsening of their existing symptoms when they get too warm. This can include increased MS muscle spasms and stiffness, blurred vision, fatigue, and cognitive difficulties. The symptoms usually resolve once the body cools down.
Managing MS involves avoiding triggers that can worsen symptoms. Here are a few things to avoid:
Overheating from hot showers, sun exposure, or excessive exercise
Ignoring rest and overexerting yourself
Poor diet and dehydration
High stress levels, which can lead to flares
Skipping medications or delaying medical care
It may seem obvious,but quitting smoking and abstaining from alcohol consumption are essential lifestyle changes.
Aside from MS, other neurological conditions can also cause heat intolerance. These include:
Autonomic dysfunction disorders (such as dysautonomia)
Parkinson’s disease
Multiple system atrophy
Spinal cord injuries
Certain peripheral neuropathies
If you experience heat intolerance but do not have MS, consult a specialist to explore potential causes.
Conclusion
MS heat sensitivity is a challenging but manageable condition. By understanding why heat worsens MS symptoms and adopting practical cooling tips for MS patients, you can improve your quality of life. Whether it’s using cooling garments, staying hydrated, or avoiding direct sunlight, small changes can make a big difference. Living with MS requires adapting to new limitations, but with the right strategies, you can stay comfortable and continue enjoying your favourite activities—even on the hottest days.
