This isn’t a medical textbook or a glossy charity brochure. MyMSisMe is a multiple sclerosis blog written from the inside looking out — one person’s attempt to make sense of life with MS, one day, one wobble, one small victory at a time.
I’m Stephen Walker, an ageing Scotsman with a stubborn streak and a nervous system that occasionally behaves like faulty wiring. I was diagnosed with MS back in 1994 at Aberdeen Royal Infirmary, and I’ve been learning how to live with it ever since. This site grew out of that slow education: the things I’ve tried, the mistakes I’ve made, the workarounds that kept me going, and the moments of humour that stopped the whole thing feeling unbearable.
This multiple sclerosis blog brings together multiple sclerosis personal stories that show what life with the condition really feels like from day to day.
You’ll find reflections on how MS has reshaped my work, my routines, and my sense of self — never from the position of a doctor, always from the position of a patient trying to stay upright in the fog. Experts help patients manage symptoms; my role here is different. I’m simply sharing how it feels to live with those symptoms day after day, and how I try to manage symptoms of multiple sclerosis without losing the parts of me that matter most.
If you’d like to know who’s behind the keyboard, you can start with About Stephen Walker — a little background on the engineer who became a blogger.
If you’re curious about how this all began, wander over to
Living with MS – My Journey, where I trace the long, uneven road from diagnosis to something resembling acceptance.
And because MS doesn’t just affect the body, it affects mortgages, careers, and pensions too, you’ll also find thoughts on staying afloat financially in
Work, Finance and MS.
This is a slow, honest space. No quick fixes, no miracle cures — just one person writing openly so that other people with MS might feel a little less alone when they recognise pieces of their own story here.
MyMSisMe is a multiple sclerosis blog built on lived experience rather than medical instruction.
People with Multiple Sclerosis – Real Lives, Real Stories
People with multiple sclerosis rarely talk about their lives in tidy chapters. MS doesn’t respect neat beginnings or endings — it drifts, surges, retreats, and occasionally rearranges the furniture when you’re not looking. That’s why this space leans heavily on multiple sclerosis personal stories rather than clinical summaries. Lived experience fills the gaps between the leaflets, translating medical language into something you can actually feel in your bones.
Writing for a multiple sclerosis blog becomes its own kind of endurance test when brain fog turns simple thoughts into slow, slippery puzzles.
After three decades of navigating relapses, remissions, reinventions and the occasional wobble worthy of slapstick comedy, I’ve learned that MS is less about heroics and more about persistence. It’s about noticing the tiny adjustments that help patients manage symptoms of multiple challenges — fatigue, balance, vision, memory — and then folding those adjustments into everyday life with as much grace (and humour) as possible.
If you’re standing at the start of your own MS road, you might find reassurance in the long-view reflections gathered in Living with MS – My Journey. It’s a candid look at what changes, what doesn’t, and what quietly evolves when you learn to live alongside a condition you never asked for.
And if you’re searching for a bit of lightness in the fog, the creative pieces in Fables in the Fog offer a softer way to look at fear, frustration, and the odd absurdity of neurological misfires. Sometimes a story slips past the defences that facts can’t reach.
MS affects each of us differently, but one truth remains steady: none of us walk this road alone. These stories are simply my footsteps — shared in the hope they echo for someone else.
MS Symptoms Decoded – Making Sense of the Unpredictable
Living with MS can feel like trying to assemble a puzzle while the picture on the box keeps changing. Some weeks it’s fatigue that pins you down; other weeks it’s tingling, stiffness, foggy thinking, or a leg that suddenly forgets how legs are supposed to behave. Over the years, I’ve had to manage symptoms of multiple sclerosis not through miracle cures, but through trial, error, patience, and the occasional well-aimed sigh.
That’s why I created the MS Symptoms Decoded section — a growing library where I unpack how symptoms feel from the inside, and how they shape daily life. No jargon, no false promises. Just practical insight from someone who’s spent three decades learning what MS looks like in real time rather than in medical diagrams.
Because symptoms don’t arrive in neat categories, I also explore how MS differs from person to person. My post on gender differences — MS Symptoms in Men and Women — looks at why two people with the same diagnosis might experience completely different realities. Understanding that diversity helps all of us approach MS with a little more kindness toward ourselves.
The National Multiple Sclerosis Society – A Trusted Companion
Although this site is rooted in lived experience, I always encourage people to check reliable medical resources for clinical guidance. Organisations such as the MS Society UK and the NHS page on Multiple Sclerosis offer clear, evidence-based information. Their research helps shape how doctors and experts help patients manage symptoms, while my role here is to translate what those symptoms feel like when you’re trying to plan a day, climb some stairs, or simply stay awake long enough to finish a cup of tea.
Together, research and lived experience give a fuller picture — the science and the story standing side by side.
Living with Multiple Sclerosis Blog – Strategies, Routines & Reflections
This corner of MyMSisMe is where daily life takes centre stage — not the dramatic parts, but the small, steady choices that keep me going. Routine has become my unlikely ally. Once upon a time, I thrived on chaos and tight deadlines; now, structure is the thing that gives me space to breathe.
This multiple sclerosis support blog isn’t about pushing yourself to achieve the impossible. It’s about noticing what helps, what doesn’t, and what shifts quietly over the years. The way MS reshapes a day isn’t always obvious from the outside, but every person with MS learns the delicate dance between energy, rest, movement, and pacing.
In the early years, I thought coping meant fighting MS with everything I had. Now I see it more as a partnership — not a willing one, mind you, but a negotiation. You learn how to rest before you collapse, how to break tasks into manageable steps, and how to lean on tools that make life more stable. Alongside lived experience, experts help patients manage symptoms, but only you can decide how to weave that advice into the texture of your actual days.
I’ve written more about these practical adjustments in Work, Finance and MS, where I talk about the slow, sometimes reluctant realisations that pushed me to rethink my career when fatigue and mobility began to dictate their own terms.
And if you’d like a gentler overview of how my routines evolved over three decades, you can wander through Living with MS – My Journey, which traces the long shift from fighting MS to working with it and the creation of this multiple sclerosis blog.
MS Living Well Podcast – Small Lessons, Big Shifts
I’ve always found that hearing how other people manage their conditions — whether through stories, interviews, or off-hand remarks — can help highlight options I wouldn’t have considered. The MS Living Well podcast is a good example of that. It’s not something I’m affiliated with, but I mention it because it illustrates a simple truth: the right idea at the right moment can change how you approach a day with MS.
Sometimes it’s a reminder to pace yourself. Sometimes it’s reassurance that you’re not imagining a symptom. Sometimes it’s a tip so small you wonder how you didn’t think of it sooner. These little sparks collectively create the kind of slow, steady progress that makes MS feel more manageable.
This section of the site continues in that spirit: quiet strategies, realistic expectations, and reflections shaped by lived experience rather than clinical instruction. If you take only one thing with you, let it be this — you don’t need to conquer MS. You only need to find the rhythm that works for you.
Stories, Imagination & Resilience
Life with MS isn’t all symptoms and strategies. Sometimes the harder truths only make sense when you step sideways into imagination — when fatigue becomes a character, frustration becomes a companion, and clarity arrives disguised as something unexpectedly soft. Creativity has always helped me find meaning where logic alone couldn’t reach.
Fables in the Fog
I began writing Fables in the Fog on a whim, wondering what might happen if the challenges of MS were recast as gentle, slightly surreal stories. A sleepy tortoise teaches the art of pacing. A mischievous breeze carries away forgotten words. A stubborn lamp, glowing dimly through the mist, becomes a symbol of resilience on the days when hope feels small.
These fables aren’t instruction manuals; they’re reflections — a slower way of looking at the emotional weight of MS without letting it sink the heart. The stories create a pause, a breath, a moment where understanding comes not from definitions but from feeling seen.
Nonsense Verse – Joyful Gems
When the fog thickens and humour feels like the only tool left in the box, I turn to Nonsense Verse – Joyful Gems. These short, playful pieces sit somewhere between poetry and mischief, offering lightness when seriousness becomes too heavy to carry alone.
Nonsense has a peculiar way of telling the truth without announcing it. Sometimes a ridiculous image or a warped rhyme says more about living with MS than a thousand careful paragraphs ever could.
If you prefer reflections with a little more grit and grin, Growing Old Isn’t for Wimps might speak to you. Ageing and MS share a talent for forcing improvisation — but they also teach resilience, adaptability, and the stubborn determination to laugh when everything else is wobbling.
These creative corners of MyMSisMe aren’t distractions from MS; they’re part of how I live with it. Imagination gives weight to experiences that might otherwise float away unspoken.
When Research Meets Reality
Living with MS means navigating two worlds at once: the clinical world of research papers, consultants, and evolving treatments — and the quieter, everyday world where symptoms meet real life. This site sits somewhere in the middle. It isn’t medical advice, and it isn’t academic; it’s a lived-in space where science becomes understandable through experience.
As a multiple sclerosis support blog, MyMSisMe doesn’t aim to interpret research so much as to humanise it. The facts matter, of course. They help shape the questions we ask our neurologists, the therapies we consider, and the hope we hold onto when the path ahead looks shaky. But I’ve learned over the years that research only becomes meaningful when it finds a place within your actual life — your routines, your limits, your ambitions, your fears.
Although I often point readers to the likes of the MS Society and the NHS for trusted medical guidance, there’s another layer to the story: how people with MS translate that information into their own unique context. What works brilliantly for one person may be completely unmanageable for another. MS never reads from the same script twice.
UT Health Austin – Research That Keeps Us Moving Forward
Institutions such as UT Health Austin remind me how far MS research has come since my diagnosis in 1994. Their work — alongside many others across the world — helps chart the wider landscape of treatments, symptom management approaches, and the ongoing quest to understand why MS behaves the way it does.
I’m not a scientist and I don’t pretend to be one, but I do draw reassurance from knowing that there are teams dedicated to making life with MS more manageable. Their research helps neurologists refine how experts help patients manage symptoms, while individuals like you and me figure out how that guidance fits within the rhythm of everyday life. Science sets the stage; lived experience performs the play.
This section of the site serves as a bridge between the two. I look at what research means for real routines, not theoretical ones. Sometimes that’s a matter of adjusting expectations. Sometimes it’s discovering a small, practical idea that makes tomorrow slightly easier than yesterday.
Whether you’re newly diagnosed or decades into the journey, the blend of research and reality can make MS feel a little less overwhelming — a reminder that progress is happening out there, even on the days when your own progress feels slow.
About the Author – One Story Among Millions
I’m Stephen Walker — engineer by trade, blogger by necessity, and someone who has spent more than thirty years learning how to coexist with a condition that doesn’t always play fair. When MS first arrived in 1994, I imagined it as a temporary detour. Instead, it became the landscape. Over time, that landscape has shaped how I think, how I work, how I rest, and how I tell my story.
MyMSisMe is a living with multiple sclerosis blog because that’s exactly what I’m doing: living with it, not fighting it, not conquering it, not pretending it’s something it isn’t. Each post is simply one person’s attempt to look honestly at MS without losing sight of humour, stubbornness, or the small joys that keep the days moving.
If you’d like to know more about the man behind the blog — the engineer who swapped circuit boards for reflection, and who believes routine is the unsung hero of MS management — you can visit About Stephen Walker.
My journey isn’t extraordinary. It’s simply one variation among millions of people around the world navigating MS in their own way. But if sharing the shape of my days helps someone else feel less alone in theirs, then this strange path has offered something worthwhile.
A Quiet Invitation to the Multiple Sclerosis Blog
If you’re new here, take your time. MS has taught me that nothing worthwhile needs rushing — not learning, not adapting, not finding your bearings. This multiple sclerosis blog is simply a place to pause, read, breathe, and recognise pieces of your own story in someone else’s words.
Start wherever feels right. Maybe the symptom guides. Maybe the reflections. Maybe a fable or a nonsense verse that makes you smile on a day when not much else does. Everything here was written slowly, honestly, and with the hope that it might offer comfort, clarity, or a moment of companionship in the fog.
MS changes many things, but it doesn’t take away the need to connect, to understand, and to be understood. If this site helps even a little with that, then MyMSisMe has done what I hoped it would.
Thank you for wandering these pages with me.
You don’t always get what you deserve and you don’t always deserve what you get.
– Stephenism
🎵 Soul from the Solo Blogger — Tunes from Túrail.