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Multiple Sclerosis Jobs: Working and Building a Career with MS

When people search for multiple sclerosis jobs, I suspect many are not really looking for a list of occupations. They are asking a much bigger question: Can I continue working with MS, and what happens if my symptoms start getting in the way?

Those were questions that became increasingly relevant during my own working life. MS did not suddenly erase my skills, knowledge or experience when I was diagnosed. What changed was my understanding of some of the difficulties I had experienced and, eventually, what I needed from my working environment.

That distinction matters. There is no occupation called an “MS job”, nor is there one career that suits everyone with multiple sclerosis. The challenge is finding work that fits the individual rather than trying to fit every person with MS into the same occupational box.

Can You Work with Multiple Sclerosis?

For many people, the answer is yes. A diagnosis does not automatically mean giving up work.

The more useful question may be whether your particular job remains compatible with the way MS affects you. Symptoms vary enormously between individuals and can also change over time. Someone whose work is physically demanding may face very different problems from somebody whose job requires sustained concentration.

The MS Trust Bring Your MS to Work campaign reflects this individual approach. It encourages people to understand the support available, consider what they need and decide how they want to discuss MS in the workplace. The MS Trust also reported that changes to working life and careers can have a significant emotional impact on people with MS.

My own working life changed considerably over the years. I began in telecommunications and field engineering, later moved into computer engineering and eventually management. Each type of work placed different demands on me.

That experience taught me something important: finding work that fits changing MS symptoms does not necessarily mean abandoning a career. Sometimes it means changing how the work is done.

What Makes a Job Suitable When You Have MS?

I would be wary of any article promising the “10 best jobs for people with MS”. How could there be such a list when MS itself varies so much?

A better starting point is to examine the demands of the job.

How physically demanding is it? Does it involve prolonged standing or walking? Is there somewhere to sit when necessary? Is the workplace excessively hot? How easy is it to reach a toilet? Does the job require driving or frequent travel?

Then there are less visible demands. A desk job might appear ideal until cognitive symptoms, concentration difficulties or fatigue enter the equation.

I have also experienced symptoms such as jangly legs, balance problems and fatigue. Something that sounds trivial when considered in isolation can become much more significant over an eight-hour working day.

The suitability of a job therefore depends upon the combination of the person, their symptoms and the demands of the work.

Think About the Job Rather Than the Job Title

Instead of asking whether accountancy, engineering or administration is suitable for someone with MS, I would ask what that particular position actually involves.

Two people with the same job title might have completely different working conditions. One might commute for two hours and spend the day in a busy office. Another might work mainly from home with flexible hours.

The job title tells us very little.

The working environment, physical demands, cognitive workload, flexibility and ability to manage energy may tell us considerably more.

Remote Working and Flexible Employment with MS

Remote working can remove some obvious difficulties.

There may be no exhausting commute. The temperature can be easier to control. Toilets and somewhere to rest are close at hand. Hours may sometimes be more flexible.

For somebody managing fatigue, being able to organise work around available energy can be valuable. I have found that thinking about activities in manageable blocks is more useful than pretending my energy is unlimited. I discuss that approach further in structuring the day to conserve energy.

But working from home is not automatically an easy answer.

A remote job can still involve deadlines, lengthy video meetings, prolonged screen use and intense concentration. Removing the commute does not remove MS.

That is why I think remote working and flexible employment with MS should be considered in terms of what they change rather than assumed to be inherently better.

Should MS Mean Changing Career?

Not necessarily.

Soon after diagnosis can be a particularly difficult time to make major decisions. The MS Society advises against rushing into decisions about leaving work immediately after diagnosis or a relapse because circumstances and symptoms may change.

I can appreciate that. Looking back at the years before my MS diagnosis, I now recognise things that made more sense with hindsight. But hindsight is very different from knowing what the future holds.

Before abandoning a career, it may be worth considering whether the existing job can change.

Could hours be adjusted? Could some duties be modified? Would working from home occasionally help? Could equipment or changes to the workplace remove a difficulty?

Sometimes a different role or career may eventually make sense. But that decision can be based on what you can do and what you want to do rather than on the diagnosis alone.

Multiple Sclerosis Jobs Employment Rights and Workplace Support

For people working in Great Britain, there is an important fact to understand: multiple sclerosis receives specific protection under the Equality Act 2010 from the point of diagnosis. Northern Ireland has separate disability discrimination legislation. The MS Society explains that this protection applies regardless of how significantly MS currently affects the individual.

This matters because employment rights and reasonable workplace adjustments may allow someone to continue doing a job that would otherwise become unnecessarily difficult.

Reasonable adjustments are not about receiving special treatment. Their purpose is to prevent a disabled employee being placed at a disadvantage.

Reasonable Workplace Adjustments

What counts as reasonable depends on the job, the employer and the individual’s circumstances.

Examples given by the MS Society include flexible or reduced working hours, working from home, additional breaks, somewhere to rest, providing a chair or stool, moving a workstation away from heat or nearer a toilet, and allowing time for medical appointments.

That list immediately illustrates why there cannot be a standard solution for MS.

Someone troubled by heat sensitivity may need something completely different from somebody experiencing mobility difficulties. Someone dealing predominantly with fatigue may need changes to their working pattern rather than physical alterations to the workplace.

The starting point should therefore be the problem:

What is making this job unnecessarily difficult for me, and is there a practical change that could reduce that difficulty?

Occupational health may also help identify appropriate workplace adjustments.

Access to Work

There is also government support available through Access to Work for eligible people in England, Scotland and Wales. Northern Ireland operates a different system.

Access to Work can provide practical support where a disability or health condition creates additional barriers to doing a job or travelling to work. Depending on individual circumstances, support can include specialist equipment, adaptations, help with travel or support workers.

Importantly, Access to Work complements rather than replaces an employer’s responsibility to make reasonable adjustments.

I think this is worth knowing even if you do not currently need assistance. MS can change, and knowing that support exists gives you another option if circumstances change later.

Disability Discrimination and Protection at Work

Disability discrimination and protection at work is another reason to understand your rights.

In Great Britain, the Equality Act covers areas including recruitment, terms of employment, promotion, training, redundancy and dismissal. Employers also have a duty to make reasonable adjustments where appropriate.

That does not mean every workplace disagreement involving someone with MS is automatically discrimination. Employment situations can be complicated, which is why I would seek proper advice rather than attempt to interpret employment law myself.

The MS Society provides detailed information about working with MS, while organisations such as ACAS and the Equality and Human Rights Commission can provide authoritative information about employment rights.

There is also the question of telling an employer.

For many jobs there is no general requirement to disclose MS, although there are circumstances where disclosure may be necessary, including some safety-sensitive or driving situations. Disclosure may also become necessary if you want your employer to make adjustments relating to your MS.

It is a personal decision and one worth considering carefully.

Building a Career Around the Person Rather Than MS

Perhaps the most important lesson from my own working life is that careers are rarely static.

Mine certainly wasn’t.

Different stages demanded different things from me physically and mentally. MS became another factor in that equation, but it wasn’t the whole equation.

That is why I prefer the idea of adapting work to the person rather than searching for a category of “multiple sclerosis careers”.

If symptoms change, the balance may change too.

You might discover that physical work has become difficult but your knowledge and experience remain as valuable as ever. Perhaps management, training, consultancy or another role uses those skills differently. Equally, someone struggling with sustained cognitive demands may find that a supposedly easier desk job is anything but easy.

Understanding your own multiple sclerosis symptoms is therefore part of understanding what you need from work.

There is another consideration that is easily overlooked: work is about more than income.

A career can provide routine, purpose, social contact, independence and a sense of identity. That is another reason I would hesitate before assuming that an MS diagnosis means stepping away from employment.

At the same time, continuing at any cost is not the objective. Circumstances differ. Symptoms differ. Financial situations differ. Priorities differ.

The aim is not to prove that MS cannot affect your career. It clearly can.

The aim is to make decisions based on your circumstances rather than on assumptions about what somebody with MS should or should not be capable of doing.

Conclusion

For me, that is the better way to think about multiple sclerosis jobs. Don’t begin by asking which occupations are available to people with MS. Begin with your skills, experience and ambitions, then consider how your symptoms interact with the demands of the work.

My own journey has taught me that a diagnosis may change the route without necessarily determining the destination. You can read more about that broader experience in my journey of living with MS.

There is no single experience of MS. MyMSisMe describes one experience while using reliable evidence to explain the wider picture.